Announcement of the Minocycline in the Treatment of Angelman Syndrome Clinical Trial (formerly C3)
The Foundation for Angelman Syndrome Therapeutics (FAST) is thrilled to report that the University of South Florida (USF) will begin to recruit participants for a new clinical trial led by Edwin Weeber, Ph.D. The Minocycline in the Treatment of Angelman Syndrome Clinical Trial will be conducted at the University of South Florida Health's Center for Advanced Health Care, 2 Tampa General Circle, Tampa, Florida 33606. A total of twenty-four patients will be randomly selected to participate in this open label trial to determine the efficacy of Minocycline as a treatment for Angelman Syndrome.Complete information about the Minocycline in the Treatment of Angelman Syndrome Clinical Trial is posted on ClinicalTrials.gov. Once you have reviewed the study criteria, if you wish to participate you will need to follow the published link at the bottom of the ClinicalTrials.gov information page or visit http://www.weeberlab.com/clinical_trials.html and submit your contact information. If you have questions, or if you do not have internet access, please contact the study coordinator at 813.396.0672.
FAST would like to thank actor Colin Farrell, the Dwight Stuart Youth Fund, and the J Cox Family Foundation for granting FAST $24,000.00 in travel assistance funds to assist families that must travel to Tampa, Florida for the Minocycline in the Treatment of Angelman Syndrome Clinical Trial. The money will be available to families that request financial assistance and it will be paid out as reimbursements for documented lodging and transportation expenses that those families incur in connection with the trial, not to exceed $1,000.00 per family.
We hope that families who have the ability to travel to Tampa without reimbursement will decline to participate in the reimbursement program. If you are selected to participate in the Minocycline in the Treatment of Angelman Syndrome Clinical Trial and would like to participate in the reimbursement program, please visit the FAST Participant and Caregiver Reimbursement Policy.
In addition to travel assistance funds, FAST has secured reduced rate lodging at the Tampa Hyatt Regency and the Wyndham Tampa Westshore and discounted airfare on American Airlines for families participating in the clinical trial. For more information on reduced rate lodging and discounted airfare, please visit FAST's Reduced Lodging and Discounted Airfare information page.
The Board of Directors of the Foundation for Angelman Syndrome Therapeutics is enormously grateful to the community, our supporters and all of the supporters of the Vivint Gives Back Project for securing the funding for the Minocycline in the Treatment of Angelman Syndrome Clinical Trial. Taking scientific research from the lab to humans in one year's time is practically unheard of. We could not have done this without all of you!!!
