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Information on Clinical Research and Trials


Understanding Clinical Trials
From the ClinicalTrials.gov website...
"Choosing to participate in a clinical trial is an important personal decision. The following frequently asked questions provide detailed information about clinical trials..."

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Current Clinical Trials for Angelman Syndrome
There are a number of clinical trials for Angelman Syndrome that are actively recruiting participants. You can also register to be alerted when new trials are added.

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Join the RDCRN Contact Registry
The Rare Disease Clinical Research Network is a consortium of doctors, nurses, research coordinators, and research labs throughout the U.S., working together to improve the lives of people with Angelman, Rett, and Prader-Willi Syndromes through research.

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Questions Regarding the Minocycline in the Treatment of Angelman Syndrome (formerly C3) Clinical Trial.
A Q&A article written by Dr. Rebecca Burdine regarding clinical trials in general and the Minocycline in the Treatment of Angelman Syndrome Clinical Trial (formerly C3) in particular.

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**BREAKING NEWS**
Announcement of the Minocycline in the Treatment of Angelman Syndrome Clinical Trial (formerly C3)
The University of South Florida announces recruitment for the Efficacy of Minocycline in Angelman Syndrome Clinical Trial (formerly C3).

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Research that Led to the Identification of Minocycline as a Potential Treatment for Angelman Syndrome
An article written by Dr. Edwin Weeber regarding the research that led to the Efficacy of Minocycline in Angelman Syndrome Clinical Trial (formerly C3).

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Participant and Caregiver Reimbursement Policy
FAST is enormously grateful to actor Colin Farrell, the Dwight Stuart Youth Fund and the J Cox Family Foundation for granting travel assistance funds for families participating in the Efficacy of Minocycline in Angelman Syndrome Clinical Trial.

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Reduced Lodging and Discounted Airfare
FAST has secured reduced lodging rates and discounted airfare for families participating in the Minocycline in the Treatment of Angelman Syndrome Clinical Trial.

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