Angelman Syndrome News And EventsMother of Child with Angelman Syndrome Gives Voice to Silent 'Angels'
Angelman syndrome is rare, but a cure is in sight. With the help of her organization, FAST, Paula Evans hopes to raise the money to make it happen.
Launch of FAST Australia
FAST Australia joins FAST US in its mission to cure Angelman Syndrome and related disorders
International Rare Disease Day February 28, 2010!
Recognition of this day across the world ensures the voice of rare disease patients is heard by more people, bringing hope and information to people living with rare diseases, their carers and their families. This years theme, "Patients and Researchers: Partners for Life!", sees FAST's Dr Edwin Weeber nominated for the Hall of Fame.
Find out what is happening in your country here
Colin Farrell set to attend the 2009 FAST Gala
The Foundation for Angelman Syndrome Therapeutics, will host an "Evening with the Stars" on Saturday, December 5, 2009 to benefit research toward a cure for the rare neurological disorder, Angelman Syndrome (AS). Gala attendees are set to include actor and Golden Globe Winner Colin Farrell and singer/songwriter Regie Hamm
Strong Advocacy leads to Refunding of RDCRC
FAST is thrilled to report a very successful visit to the NIH which helped ensure another five years of funding for the Angelman Syndrome/Prader-Willi/Rett Syndrome Natural History Study!
FAST board member signs book deal
Hit singer/songwriter/producer and Foundation for Angelman Syndrome Therapeutics board member Regie Hamm scored his biggest hit this year with the solo-written, 16-week No. 1 song "Time of My Life" for American Idol's David Cook, and today he has signed a combined book and record deal with the Oklahoma-based Tate Publishing and Tate Music Group.
Angelman Syndrome is cured in the mouse model
This exciting research has created a paradigm shift in the way we view the etiology of Angelman Syndrome and the genetic rescue opens up the real possibility of a cure for AS. Read about the implications this breakthrough research will have for Angelman Syndrome, Autism and other cognitive functions.
Winner of American Idol opens up about his daughter's diagnosis
Regie Hamm, winner of the American Idol songwriter competition, discusses the challenges he and his wife faced getting their daughter Bella diagnosed and how the diagnosis has given his life and career a new focus.
Angelman research is selected as the "Scientific Highlight of the Year"
Angelman Syndrome research, conducted by Dr. Edwin Weeber and Dr. Ype Elgersma, receives the prestigious distinction of being selected as the "Scientific Highlight of the Year" by the Federation of European Neuroscience Societies.
Actor Colin Farrell speaks out about Angelman Syndrome.
Hollywood superstar, Colin Farrell, speaks with pride about the blessing his son James is. James, four years old, is diagnosed with Angelman Syndrome.